Great Grand Parents for Autism Advocacy
Life is mostly froth and bubble;
Two things stand like stone:
Kindness in another's trouble,
Courage in your own.
-Adam Lindsay Gordon
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Sandra & Culver address questions at the July GGPAA meeting. |
Welcome to our Autism Advocacy and Awareness
web page. Sandy and I are Great-Grandparents and Legal Guardians busy raising our Great-Grandson, an Austistic Spectrum Disorder,
13 year old, 8th grader.
We are not educational or psychologist experts. We offer no professional recommendations
or cures. All we have to offer and share are our exposures, experiences, investigative study results, understanding and concern
from raising a young middle-school student with Autism Spectrum Disorder.
Our Ambition, Desire and Purpose is to Advocate
Awareness of Pervasive Development Disorders (PDD). We have started a local monthly group for information dissemination, questions,
discussion and support for parents, extended families, friends, neighbors and the community in general.
The Autism
Society of America states, "the terms, Autism (Greek for Self) and Autism Spectrum Disorder, are often used interchangeably
and refer to three of the five disorders known as Pervasive Development Disorders. The three Autism Spectrum Disorders are:
Austic Disorder, Asperger's (Syndrome) Disorder and PDD-NOS (not otherwise specified)."
Autism has no single cause.
ASA describes "Autism as a brain disorder that affects a person's ability to communicate, to reason and to interact with others.
It is a Spectrum disorder that affects individuals differently and to varying degrees of severity and is often found in combination
with other disabilities. Autism Spectrum Disorders are neurological disorders, developmental disabilities. These disorders
are not caused by psychological factors.
"Autism is not caused by bad parenting. Children with Autism are not unruly
kids who choose to misbehave. Researcher believe there is a strong genetic component with a range of possible external or
environmental triggers. Whatever the cause, it is clear thar children with Autism are born with the disorder or the potential
to develop it.
"There are no medical tests for Autism. There is no cure for Autism. But evidence shows that early
intervention results in positive outcomes for children with Autism. The earlier the better." -Autism Society of America
Autism
was first described by Child Psychiatrist Len Kanner in 1943. In 1995 about one birth out of 650/1000 were autistic, several
years ago it was 1 in 250 and today, one in 166 are Autistic. It affects boys 4 to 5 times more than girls.
Please
do not hesitate to contact us at ggpaa@kuhens.org if you have any questions or comments. We're here to help.
-Culver
L. Kuhens
Click here to see the GGPAA in the Muscatine Journal
GreatGrandparents for Autism Advocacy Neighborhood Link
UI Regional Autism Services Program
National Autism Association
You're Going To Love This Kid
Autism is a World
Social Thinking with Michelle Winner
Lutheran Services in Iowa
IDEA - PTI - ASK
National Info Center For Youth with Disabilities
AARP Grandparent Information Center
The Handle Institute
Spectrum Training Systems, Inc.
Syracuse University
Autism Society of America
Autism Gear
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